Herbert Renz-Polster retweeted
"Stress Induced Transcriptomic Changes in♀️with #MEcfs Reveal Disrupted Immune Signatures
Under maximum stress #pwME are unable to facilitate transcriptomic changes in the cells of their immune system that would allow them to permit recovery 👇
mdpi.com/2105386 #mdpiijms
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I’m surprised a person with #LongCovid is allowed to donate blood when #pwME #MECFS are not allowed to in most countries.
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Three members of my household have COVID & I’ve woken up with symptoms. Has any #pwME had trouble accessing antivirals for C-19? I’m in Australia where #MECFS guidelines are 20 years out of date & it’s still seen as a psychosocial condition 🙄 I have mod-severe ME.
#LongCOVID
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PR & Journo Requests retweeted
Hey editors from #BC outlets, looking to find a home for a story about the costs of #disability like ME, lack of public data, and other issues folks have faced within the province.
I've already got the interviews and data to support the piece.
#longCOVID #PwME #JournoRequest
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Kristin Houlihan, Writer retweeted
I got #SevereME going very severe can someone help with this plz I got nothing left 😭😭😭
#PwME #MECFS #NEISvoid
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☝🏻Help needed arranging this IV Hartmanns/magnesium. Tricky but may be possible. Can’t do alone.
Blacking out, memory loss, seizures soon.
Nurse, nurse practitioner or doctor - help!
#meawarenesshour #pwME #pwLC #Migraine #POTS #MECFS #chronicillness #MedTwitter #NurseTwitter
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☝🏻Help needed arranging this IV Hartmanns/magnesium. Tricky but may be possible. Can’t do alone.
Blacking out, memory loss, seizures soon.
Nurse, nurse practitioner or doctor - help!
#meawarenesshour #pwME #pwLC #Migraine #POTS #MECFS #chronicillness #MedTwitter #NurseTwitter
Tracey Burgess retweeted
Another (mini) first for me today: first time I independently brought myself to a restaurant (in my electric wheelchair) in 28 years 😀
Here I am with Aine, a friend from the Irish ME community
#PwME #MEcfs #CFS
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Next pizza in Naples 🇮🇹 Tom! 🍕
Hope you’re doing aa good as possible 😊 from a fellow #pwME
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#MECFS #MyalgicEncephalomyelitis can I ask #pwME do you have periods of lost memory? Not forgetfulness, but entire periods of time missing? I've recently come across some young sufferers with this, & my daughter has it, but no one talks of it. Could it be brain injury from ME?
IrishMECFSAssociation@mastodon.ie retweeted
New from the US:
"Stress-Induced [using exercise challenge] Transcriptomic Changes in Females with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Reveal Disrupted Immune Signatures"
Free full text:
mdpi.com/1422-0067/24/3/2698
#MEcfs #CFS #PwME
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Tracey Burgess retweeted
“At the time of writing, we have over 23,000 people registered as a user on the DecodeME participant portal. Of those, over 17,000 participants have completed the questionnaire, and nearly 9,000 people have already been sent a spit kit” i.e. more still needed 🙏
#MEcfs #CFS #PwME
As we resume work for the year ahead, we want to take the opportunity to look back on 2022 and see all we have achieved so far in this study. Here are some of our highlights from last year!
decodeme.org.uk/what-we-achi…
Show this thread
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FRΛNK|MΞYΞR | frv@Nr.10 retweeted
@#pwME
Which treatments/drugs help you with #energy and #PEM?
Please only share the name of the drug.
#MECFS #LongCovid
Please share this post to get many comments. Helpful for all of us I think.
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