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Herbert Renz-Polster retweeted
"Stress Induced Transcriptomic Changes in鈾锔弚ith #MEcfs Reveal Disrupted Immune Signatures Under maximum stress #pwME are unable to facilitate transcriptomic changes in the cells of their immune system that would allow them to permit recovery 馃憞 mdpi.com/2105386 #mdpiijms
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Replying to @dysclinic
I鈥檓 surprised a person with #LongCovid is allowed to donate blood when #pwME #MECFS are not allowed to in most countries.
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Three members of my household have COVID & I鈥檝e woken up with symptoms. Has any #pwME had trouble accessing antivirals for C-19? I鈥檓 in Australia where #MECFS guidelines are 20 years out of date & it鈥檚 still seen as a psychosocial condition 馃檮 I have mod-severe ME. #LongCOVID
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PR & Journo Requests retweeted
Hey editors from #BC outlets, looking to find a home for a story about the costs of #disability like ME, lack of public data, and other issues folks have faced within the province. I've already got the interviews and data to support the piece. #longCOVID #PwME #JournoRequest
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Replying to @dysclinic
Are they allowed to as #pwME are not鈥 Seems very strange
I got #SevereME going very severe can someone help with this plz I got nothing left 馃槶馃槶馃槶 #PwME #MECFS #NEISvoid
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鈽濔煆籋elp needed arranging this IV Hartmanns/magnesium. Tricky but may be possible. Can鈥檛 do alone. Blacking out, memory loss, seizures soon. Nurse, nurse practitioner or doctor - help! #meawarenesshour #pwME #pwLC #Migraine #POTS #MECFS #chronicillness #MedTwitter #NurseTwitter
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鈽濔煆籋elp needed arranging this IV Hartmanns/magnesium. Tricky but may be possible. Can鈥檛 do alone. Blacking out, memory loss, seizures soon. Nurse, nurse practitioner or doctor - help! #meawarenesshour #pwME #pwLC #Migraine #POTS #MECFS #chronicillness #MedTwitter #NurseTwitter
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Tracey Burgess retweeted
Another (mini) first for me today: first time I independently brought myself to a restaurant (in my electric wheelchair) in 28 years 馃榾 Here I am with Aine, a friend from the Irish ME community #PwME #MEcfs #CFS 1/
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Another (mini) first for me today: first time I independently brought myself to a restaurant (in my electric wheelchair) in 28 years 馃榾 Here I am with Aine, a friend from the Irish ME community #PwME #MEcfs #CFS 1/
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Next pizza in Naples 馃嚠馃嚬 Tom! 馃崟 Hope you鈥檙e doing aa good as possible 馃槉 from a fellow #pwME
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motherofaliens retweeted
My latest horrible ME realization: I can get PEM from eating too much food at one time 馃 #pwME
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#MECFS #MyalgicEncephalomyelitis can I ask #pwME do you have periods of lost memory? Not forgetfulness, but entire periods of time missing? I've recently come across some young sufferers with this, & my daughter has it, but no one talks of it. Could it be brain injury from ME?
IrishMECFSAssociation@mastodon.ie retweeted
New from the US: "Stress-Induced [using exercise challenge] Transcriptomic Changes in Females with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Reveal Disrupted Immune Signatures" Free full text: mdpi.com/1422-0067/24/3/2698 #MEcfs #CFS #PwME
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Tracey Burgess retweeted
鈥淎t the time of writing, we have over 23,000 people registered as a user on the DecodeME participant portal. Of those, over 17,000 participants have completed the questionnaire, and nearly 9,000 people have already been sent a spit kit鈥 i.e. more still needed 馃檹 #MEcfs #CFS #PwME
As we resume work for the year ahead, we want to take the opportunity to look back on 2022 and see all we have achieved so far in this study. Here are some of our highlights from last year! decodeme.org.uk/what-we-achi鈥
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FR螞NK|M螢Y螢R | frv@Nr.10 retweeted
@#pwME Which treatments/drugs help you with #energy and #PEM? Please only share the name of the drug. #MECFS #LongCovid Please share this post to get many comments. Helpful for all of us I think.
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