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Soroya Cordery retweeted
Stamp Collection - Please save your stamps for the #MEAssociation Thank you to everyone who saves #stamps ! Please Note: The address is for stamps only using Recycling for Good Causes Info: recyclingforgoodcauses.org/s… #pwME #MECFS #MyalgicE #Stamps #Charity #Fundraising
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Eliot Stoneciphers retweeted
New video: Chronic Fatigue Syndrome is a terrible name. It does not convey the severity or the nature of the condition, it trivialises and stigmatises the illness. Brief summary including origins, poor criteria and peoples attitudes. #MECFS #MyalgicE
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Replying to @Silas33
Sorry you’ve had this. Old fashioned idea of ‘do as I say,or..’ #LongCovid #MyalgicE #pwME
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Are you on LinkedIn? If so, did you know you can follow the ME Association on this platform too! linkedin.com/company/me-asso… We'd be grateful if you could follow us, thank you! #pwME #MECFS #MyalgicE #LongCovid #linkedinprofile
Veronica Jones retweeted
🧵 A useful 4-page summary of the 2021 NICE ME/#CFS guidelines is available here: s3-eu-west-2.amazonaws.com/l… It was created by a team led by Dr Nina Muirhead #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #pwME 1/
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Colin-Roy Hunter retweeted
Die meisten Ärzte glauben, man könne sich bei jeder Erkrankung hochtrainieren und dadurch Verbesserungen erzielen. Das ist Bullshit, bei #MECFS verursacht dieses Verhalten ausschließlich Verschlechterungen und ist schädlich. #pwme #millionsmissing #MyalgicE
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Sollte man das mal testen lassen? RNASE-L? #MECFS #MyalgicE Kann man das testen außerhalb von Forschungseinrichtungen?
1997: RNASE-L, biomarker discovered by Robert Suhadolnik and colleagues, Temple University "Something new is going on in chronic fatigue syndrome," Dr. Suhadolnik testified before Congress in May 1997. "RNASE L [an enzyme] was overactive, unlike anything we had ever seen before."
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You can listen to the five-minute programme, ‘Word on M.E.’ here: ow.ly/eO2k50MLEpG #MyalgicE #MyalgicEncephalomyelitis#MECFS
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