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Reminder that every Weds - Thurs in the Southern Hemisphere - it's #MEAwarenessHour 20:00 BST 21:00 Europe Talking all things #MyalgicEncephalomyelitis #MillionsMissing #LearnFromME Please join us! 馃挋 Poster Art every week: @AertbyLisa 馃檹
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#WeeklyReminder Morgen ist Mittwoch und zwischen 21-22 Uhr internationale #MEAwarenesshour . Betroffene geben Einblick in ihr Leben mit #MECFs #LongCovid #PostVac . Fordern - zu Recht - Aufkl盲rung, Anerkennung, Forschung und Unterst眉tzung!
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#MEawarenesshour thread on debunking of infamous Pace trial 猬嗭笍. Same authors prescribing same for #LongCovid some of whom have #PEM same as #MEcfs do Symptoms worsen after pushing beyond energy envelope #pwME #NotJustTired
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Thread on cdc recognising overlap #MEcfs and #LongCovid iactivity management very important #meawarenesshour
Replying to @TomKindlon
8/ 鈥(Contd) Also known as pacing, this activity management approach enables a patient to find their individual limits for physical and mental activity to mitigate symptom flare-ups.[5]鈥 #LongCovid #mecfs #pwme #CovidLong #COVIDlonghauler
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sethi1337.eth 馃挙 @alwaystirednfts retweeted
Um die 脛rzte zu sensibilisieren bedarf es wahrscheinlich gar nicht viel [...] es muss von Herrn Lauterbach einfach mal gesagt werden: 鈥濪as ist ein riesen Problem und wir m眉ssen das jetzt tun!鈥 @Karl_Lauterbach bitte setzen Sie sich f眉r #MECFS Kranke ein! #MEAwarenessHour
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#MEAwarenessHour Una encuesta internacional de experiencias y actitudes hacia el 'pacing' [aconpasar] utilizando un monitor de frecuencia card铆aca para personas con #EncefalomielitisMi谩lgica /s铆ndrome de fatiga cr贸nica (T 馃嚜馃嚘) content-iospress-com.transla鈥
Delighted to see the write-up of the Heart Rate Monitoring survey is now published and open access 馃憞馃憞馃憞 content.iospress.com/article鈥
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It's M.E. Linda 馃挋 馃樂 retweeted
Patients with #MECFS want to recover. If they can鈥檛 recover because there is no specific treatment, they want support and respect. They are denied the former due to lack of research and the latter due to lack of recognition. That leaves patients in a limbo. #MEAwarenessHour
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Solange #Rehakliniken Menschen mit #MECFS trotz bestehender Belastungsintoleranz #PEM mit Ergometer, Laufband, +Gehtrainig behandeln wollen, solange darf kein Mensch mit PEM in Reha geschickt werden. Das f眉hrt unweigerlich zur Verschlechterung, @DRV_Bund_Reha! #MEAwarenesshour
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