Lisa_Cat retweeted
Reminder that every Weds
- Thurs in the Southern Hemisphere -
it's #MEAwarenessHour
20:00 BST 21:00 Europe
Talking all things #MyalgicEncephalomyelitis
#MillionsMissing
#LearnFromME
Please join us! 💙
Poster Art every week: @AertbyLisa 🙏
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FRΛNK|MΞYΞR | frv@Nr.10 retweeted
#WeeklyReminder
Morgen ist Mittwoch und zwischen 21-22 Uhr internationale #MEAwarenesshour .
Betroffene geben Einblick in ihr Leben mit #MECFs #LongCovid #PostVac .
Fordern - zu Recht - Aufklärung, Anerkennung, Forschung und Unterstützung!
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#MEawarenesshour thread on debunking of infamous Pace trial ⬆️.
Same authors prescribing same for #LongCovid some of whom have #PEM same as #MEcfs do
Symptoms worsen after pushing beyond energy envelope
#pwME #NotJustTired
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Thread on cdc recognising overlap #MEcfs and #LongCovid iactivity management very important #meawarenesshour
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“(Contd) Also known as pacing, this activity management approach enables a patient to find their individual limits for physical and mental activity to mitigate symptom flare-ups.[5]”
#LongCovid #mecfs #pwme #CovidLong #COVIDlonghauler
Show this thread
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Canny Condor Gal retweeted
As we await another biopsychosocial attack on disabled ppl (#pwME over new NICE guidance), here's an overview of my work discussing professional, financial & personal interests of the UK inner circle, & the politics that fuels injustice. #MEAwarenessHour
dpac.uk.net/2022/12/agitatin…
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sethi1337.eth 💤 @alwaystirednfts retweeted
Um die Ärzte zu sensibilisieren bedarf es wahrscheinlich gar nicht viel [...] es muss von Herrn Lauterbach einfach mal gesagt werden: „Das ist ein riesen Problem und wir müssen das jetzt tun!“
@Karl_Lauterbach bitte setzen Sie sich für #MECFS Kranke ein!
#MEAwarenessHour
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Mari Carmen retweeted
#MEAwarenessHour
Una encuesta internacional de experiencias y actitudes hacia el 'pacing' [aconpasar] utilizando un monitor de frecuencia cardíaca para personas con #EncefalomielitisMiálgica /síndrome de fatiga crónica
(T 🇪🇦) content-iospress-com.transla…
Delighted to see the write-up of the Heart Rate Monitoring survey is now published and open access
👇👇👇
content.iospress.com/article…
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It's M.E. Linda 💙 😷 retweeted
Patients with #MECFS want to recover. If they can’t recover because there is no specific treatment, they want support and respect. They are denied the former due to lack of research and the latter due to lack of recognition. That leaves patients in a limbo. #MEAwarenessHour
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Simone retweeted
Solange #Rehakliniken Menschen mit #MECFS trotz bestehender Belastungsintoleranz #PEM mit Ergometer, Laufband, +Gehtrainig behandeln wollen, solange darf kein Mensch mit PEM in Reha geschickt werden.
Das führt unweigerlich zur Verschlechterung,
@DRV_Bund_Reha!
#MEAwarenesshour
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