Filter
Exclude
Time range
-
Near
𝕋𝕣𝕖𝕓𝕚𝕒𝕟 retweeted
Ich bin 04/21 an #LongCovid, #MEcfs erkrankt. Im Oktober werde ich ausgesteuert. Dann muss ich ALG1 beziehen. Bett&Zimmer kann ich nur noch für den Toilettengang verlassen & Besserung ist nicht in Sicht. I am fore sure #NotRecovered - Millions aren‘t & we strongly need help!
7
53
1
172
Replying to @mecfsbuch
Sehr traurig, dass die komprimierte Literatur zu #LongCovid ==> #MECFS nur 4 von 160 sogenannten Gesundheits - Politikern interessiert. Danke für deinen mega Aufwand. 💚 Politiker wollen weiter, ihre Durchseuchung-Strategie nach #Stöhrfall und #Streeck fahren.
1
1
5
Promo is an online video maker that will skyrocket your #busine̡ss. Create engaging #video ads in minutes. ️ #nba2k23 #mecfs #amazon #smarthome #breastcancer #happyhour #easyrecipes #jobsearch 👉promo.grsm.io/demo?t=1660872…
0
Replying to @death__denial
The third part of the podcast series where I speak with @Brainstemlet about chronic illness is out now - I think this is where the series really begins to pick up steam, I highly recommend any of my interested friends listen soundcloud.com/headlessyouth…
Show this thread
NHMomma4 retweeted
Want to know what's crazy? Instead of keeping up with the science, a lobby of psychologists took the easy route for decades, gaslighting millions that their severe medical condition was all in their heads. Do you know what's even crazier? It is happening again. #MECFS #LongCovid
31
313
13
1,077
NHMomma4 retweeted
"As many scientists and patients have suspected, #LongCovid shares certain features with myalgic encephalomyelitis/chronic fatigue syndrome (#MECFS), another condition thought to follow an infection." science.org/content/article/…
6
117
3
308
I really hope that all doctors get on board with this: you don’t need to have #LongCovid or #MECFS to read literature on the topic or #BelievePatients.
Dear patients with #LongCovid #MECFS, You are not crazy, lazy, or lying. You have a physiologic disorder and deserve answers. From, A doctor with the same problem.
1
5
49
Yaron Fishman🕊️🔥🦋 retweeted
Selfishly, I’d love to see #PEM prioritized as a focus area for #LongCovid & #MECFS research. I know it’s hard to isolate a single symptom in this complex web of dysfunction, but it truly is the most life-limiting part of this disease for me (and I suspect for many others).
42
93
7
827
Donna in Lakeland FL retweeted
This finding on low cortisol in #longcovid is key. For many years low cortisol was a constant part of my lab workup for #mecfs. It's challenging to treat and needs to be done on a personalized basis. But the finding by @PutrinoLab and @VirusesImmunity is a meaningful step forward
It has been a few days since the release of our latest #LongCovid paper: an incredible amount of work from @VirusesImmunity and her team, as well as so many other brilliant and hardworking colleagues. As you might imagine it has generated quite a bit of 1/ medrxiv.org/content/10.1101/…
Show this thread
3
25
151
Jetzt muss ich mit 41 Jahren Windeln tragen 😭. Das fühlt sich falsch an, genauso 24/7 im dunklen Zimmer zu liegen. Ich möchte so gerne Leben, leider mit schwerer #MECFS nicht möglich. Wir brauchen dringend Hilfe, ich bin eine von vielen.
20
58
2
339
Show this thread
When were you told that about GET? Apart from it sounds more like a description of pacing, which is intended to prevent as many relapses, GET is no longer recommended by NICE as a treatment for #MECFS.
toa3000 retweeted
Dear patients with #LongCovid #MECFS, You are not crazy, lazy, or lying. You have a physiologic disorder and deserve answers. From, A doctor with the same problem.
69
486
26
2,769
Replying to @meghanor
This breaks my heart. I've lived with #MEcfs for >20 years, but what keeps me fighting for research is the kids. I don't want to see any more kids have to live with it. And now it's kids with #LongCovid. It's heartbreaking. 💔 #LongCovidKids
Karen Hartmann retweeted
#LongCovid-, #PostCovid-, #MECFS-Kinder haben KEINE Kindheit mehr sondern leiden. Das Leben von Kindern mit Vorerkrankungen wird gefährdet, weil Sie @schroeder_k in all Ihrer Empathielosigkeit Desinformationen verbreiten. Warum? Für ein paar Likes von Querdenker*innen?
Warum ich von Anfang an so kritisch gegenüber #Maskenpflicht in #Schulen bin? Sie nimmt unbeschwerte Kindheit. Und dies meines Erachtens ohne Not,unter Realbedingungen (!) mit zweifelhaftem Nutzen und nun schon bald das dritte Jahr. Kinder haben aber nur diese eine #Kindheit!
2
25
118