Me with #SevereME, #LongCovid plus several other dx and a million other problems.
People in general forget I exist.
#chronicillness #pwME #DisabilityTwitter #Disability #MECFS #MEAwarenesshour
I wonder how many #longcovid patients have just gone off the grid bc they can no longer keep up with the medical appointments due to their worsening so they’re suffering in silence instead, meanwhile the docs assume they’ve recovered.
Anna🇦🇺needs good doctors & a safe place to live retweeted
☝🏻Help needed arranging this IV Hartmanns/magnesium. Tricky but may be possible. Can’t do alone.
Blacking out, memory loss, seizures soon.
Nurse, nurse practitioner or doctor - help!
#meawarenesshour #pwME #pwLC #Migraine #POTS #MECFS #chronicillness #MedTwitter #NurseTwitter
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Hope OTs +all others aware:
#MEcfs +many #LongCovid have #PEM or #PESE ie all symptoms worsen not just fatigue if push selves too hard+don’t pace selves
Many have #OrthostaticIntolerance ie standing still/sitting upright too long make much worse
Aids really help
#MEawarenesshour
Veronica Jones retweeted
🌻 Share Like RT posts during #MEAwarenessHour in 11 hours time🌻🌻
20:00 GMT 21:00 Europe
Talking all things #MyalgicEncephalomyelitis
Poster credit: @AertbyLisa 🙏
Remember the 1 hour chat #MEAwarenessHour
each Wednesday/Mercredi/Mittwoch
20:00 GMT 21:00 Europe
to talk all things #MyalgicEncephalomyelitis
UK #pwME please sign up/share @DecodeMEstudy
Poster credit: @AertbyLisa 🙏
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Something to be aware of on weekly voting:
If no grant is given in one round-the votes for a charity are carried forward to the next
Sometimes additional votes are allowed
@Invest_in_ME
@MEResearchUK
25% ME Group
25megroup.org/ mygivingcircle.org/leaderboa…
Oliver Striebling ♿ retweeted
Heute Abend von 21 bis 22 Uhr: #MEAwarenessHour wie jeden Mittwoch. Insbesondere diejenigen, die noch nicht viel über #MECFS wissen, bitte lest dann unter dem Hashtag mit und unterstützt die Betroffenen, damit endlich Forschung, Behandlung und Betreuung stattfinden. Danke!
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🌻Weekly reminder-same day as #MEAwarenessHour 🌻
Please VOTE for @Invest_in_ME to receive some grant monies from My Giving Circle-closes 31 March
Currently at #7 on this new round
🌻Regular Weekly votes needed please!!🌻
#MyalgicEncephalomyelitis
mygivingcircle.org/invest-in…
VR Gilchrist retweeted
Some researchers perpetuate the belief that #MECFS is psychogenic in nature. Did you know that many leading Universities now pursue biomedical research on ME/CFS and that many researchers accept the biological nature of the illness after reviewing the evidence? #MEAwarenessHour
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MEcfs Betroffen seit 36 Jahren retweeted
#WeeklyReminder
Morgen ist Mittwoch und zwischen 21-22 Uhr internationale #MEAwarenesshour !
Wichtige Zeit, um geballt auf fehlende Forschung, Aufklärung und Unterstützung für #MECFS , aber auch #LongCovid und #PostVac Betroffene aufmerksam zu machen.
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