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This activity is really great❤️ I hope that next year Japanese patients (LGMD) will take notice of this activity. I believe that we can make a positive change by doing what we can now, instead of waiting for the disease to progress💊 #LgmdAwareness. #LgmdDay2022
As the world celebrates the 8th annual LGMD AWARENESS DAY today, we invite you to help us Advocate • Educate • Celebrate! There is great strength in awareness, understanding and unity. The LGMD community demonstrates global connectivity each year when we campaign together 1/4
Listen to Nicholas E. Johnson, MD, MSci, give a brief talk in honor of limb-girdle muscular dystrophy awareness day. #LGMDawareness #LgmdDay2022 #limbgirdle #musculardystrophy
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Last year, the FDA cleared a drug application for Asklepios BioPharmaceutical’s LION-101, an investigational gene therapy for the treatment of Limb-Girdle Muscular Dystrophy Type 2I/R9. #LgmdDay2022 #limbgirdle #musculardystrophy Read more here: ow.ly/1ixf50KWjGg
Today is Limb Girdle Muscular Dystrophy (LGMD) Awareness Day. There are over two dozen forms of LGMD, many of which lack any treatment. CRD is proud to be advancing development programs for multiple forms of LGMD including types 2b, 2i and 2g. #LGMDDay2022
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Study results investigating the potential of SRP-9003, a gene therapy for limb-girdle muscular dystrophy type 2E, showed the therapy’s positive safety and expression results from a small number of clinical trial participants. #LgmdDay2022 Read: ow.ly/kX3Z50KWkEl
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There is power in action. TOGETHER WE ARE STRONGER! Take a moment to shine a light on the importance of LGMD Awareness today! 4/4 #IAMLGMD #LGMDawareness #TogetherWeAreStronger #LgmdDay2022
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Nicholas E. Johnson, MD, MSci, spoke with @neurology_live that for #LGMD, there are a variety of genetic mutations that drive the disease—some of which are extremely rare. #LgmdDay2022 #LGMDawareness #limbgirdle #musculardystrophy Watch it here: ow.ly/PUJU50KWjoz
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Listen to Nicholas E. Johnson, MD, MSci, give a brief talk on limb-girdle muscular dystrophy and the future of clinical trials in this field of research. #LGMDawareness #LgmdDay2022 #limbgirdle #musculardystrophy
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Today we’re wearing lime green and joining the global #limbgirdle community in raising awareness of this rare neuromuscular disease. #LgmdDay2022 #LGMD #TogetherWeAreStronger
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A phase 1/2 study on the AAV-based gene therapy SRP-9003 suggested that treatment with the @Sarepta agent resulted in sustained protein expression in muscle tissue in patients with limb-girdle muscular dystrophy Type 2E. #LgmdDay2022 #LGMDawareness View: ow.ly/tQR250KWkqr
BBP-418, an investigational agent for limb-girdle muscular dystrophy type 2i, signified that oral therapy has the potential to address both the root cause of #LGMD2i and drive functional improvements for patients. #LgmdDay2022 View more here : ow.ly/4yoH50KWikH
Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness #LgmdDay2022 #LgmdFacts #TogetherWeAreStronger
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Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness #LgmdDay2022 #LgmdFacts #TogetherWeAreStronger
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10 Days Until LGMD Awareness Day 2023. Are you ready to help us advocate - educate - celebrate LGMD? 💚 It's time to get out your #LimeGreen4LGMD awareness! #LGMDawareness #LgmdDay2022 #IAMLGMD #TogetherWeAreStronger
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Check out the "LGMD Spotlight Interview" featuring Kae who has LGMD 2B/R2 and lives in Canada. 💚 Read the full interview at lgmd-info.org/2021/03/03/ind… #LGMDawareness #CureLGMD #LgmdDay2022 #TogetherWeAreStronger
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Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness #LgmdDay2022 #LgmdFacts #TogetherWeAreStronger
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Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness #LgmdDay2022 #LgmdFacts #TogetherWeAreStronger
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Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness #LgmdDay2022 #LgmdFacts #TogetherWeAreStronger
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