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Lindsay Deneault retweeted
In honor of #LGMDAwareness Day, meet Sammy, a teenager living with limb-girdle muscular dystrophy 2i (LGMD2i). We are grateful to Sammy and her family for sharing their story. Join us on #LGMDAwarenessDay. Hear her story here: bit.ly/3y4UhzY
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#LGMDawareness can spread much faster with more individuals, from all parts of the world, through re-posts, likes, and shout outs on social media! 💚 Remember, whether you are a long-time community member, or new to the scene...#TogetherWeAreStronger #IAMLGMD
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LGMD Fact #37: Symptoms and progression of Limb-Girdle Muscular Dystrophy (LGMD) disorders vary among patients of the same sub-type, or even within the same family. 💚 To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness #LgmdFacts
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Happy Halloween 💚 Give a "TREAT" today! Consider donating to organizations and foundations that support limb-girdle muscular dystrophy (LGMD) research. For a list of international LGMD organizations, visit lgmd-info.org/resources/lgmd… #LGMDawareness #TogetherWeAreStronger
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LGMD Fact #33 A new nomenclature (naming system) for LGMD was developed during the 229th ENMC workshop in Naarden, The Netherlands in 2017. To learn more about LGMD, please visit our website: LGMD-Info.org #LgmdAwareness
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Aujourd’hui a lieu la Journée d’information dédiée aux #LGMD à Lyon 💚! Quel plaisir de vous retrouver après la pause Covid ! #LGMDAwareness
Ce matin nous accueillons à l’Hôtel de Région @auvergnerhalpes à Lyon la journée régionale d’informations et d’échanges sur les myopathies de ceintures (LGMD) @Telethon_France - Groupe d'intérêt LGMD Myopathies des Ceintures
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This activity is really great❤️ I hope that next year Japanese patients (LGMD) will take notice of this activity. I believe that we can make a positive change by doing what we can now, instead of waiting for the disease to progress💊 #LgmdAwareness. #LgmdDay2022
As the world celebrates the 8th annual LGMD AWARENESS DAY today, we invite you to help us Advocate • Educate • Celebrate! There is great strength in awareness, understanding and unity. The LGMD community demonstrates global connectivity each year when we campaign together 1/4
In #LGMDAwarenessday ,we renew our hope that limb-girdle muscular dystrophy patients will be educated,advocated and finally soon treated .
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El #30Septiembre conmemoramos el Día Mundial de la Distrofia Muscular de Cinturas El diagnóstico temprano es fundamental para mejorar la calidad de vida de estos pacientes y sus familias ¡Ayúdanos a lograr mayor visibilidad compartiendo!💚 @LgmdAwareness #LGMDAwareness
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Listen to Nicholas E. Johnson, MD, MSci, give a brief talk in honor of limb-girdle muscular dystrophy awareness day. #LGMDawareness #LgmdDay2022 #limbgirdle #musculardystrophy
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Replying to @AnthonyDiComo
Love the lineup although not a fan of Pete hitting 2nd. #LgmdAwareness
There is power in action. TOGETHER WE ARE STRONGER! Take a moment to shine a light on the importance of LGMD Awareness today! 4/4 #IAMLGMD #LGMDawareness #TogetherWeAreStronger #LgmdDay2022
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Team Jain COS Newcastle looking to the future on #LgmdAwareness day!
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Nicholas E. Johnson, MD, MSci, spoke with @neurology_live that for #LGMD, there are a variety of genetic mutations that drive the disease—some of which are extremely rare. #LgmdDay2022 #LGMDawareness #limbgirdle #musculardystrophy Watch it here: ow.ly/PUJU50KWjoz
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