“Make the best of every moment. We’re not evolving. We’re not going anywhere.” #longcovid #longhauler

Joined March 2009
A lot of people talk about #longcovid in terms of a list of symptoms. But beyond symptoms there's something else. Like a feeling that something at the very core of your being is fucked. I can't put it more accurately or eloquently. But other #longhaulers will know what I mean.
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I ❤️ Hannah
To the driver who called me fat when I was riding today, hope you enjoy the milkshake I poured through the window you left open when you parked 😘
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Fab - I love when someone finds something that works for them ❤️🙂
I walked 4 miles at 4300 ft (1310m)!!! It was wonderful. I couldn't believe I was out in the forest, walking🏞️. Thank goodness my health keeps improving. 😃🥰 #LongCovid #Nattokinase #Serrapeptase
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John Kennedy retweeted
Any #longcovid folks dx’d w/temporal arteritis? I thought my cluster headaches were due to sinus issues but it appears not and they’re worsening by the day. Pain matches much of this diagram. My neurologist is useless (stopped seeing him last year). Thinking this is vascular.
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This is amazing - and so utterly relatable to. Thank you for sharing.
An artwork I created a few years back expressing what #SevereME feels like to me. The ME you don't see... #pwME #MEcfs #LongCovid #LCME
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Wtf are you following me for then??? 😂😂😂
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Can we please normalize saying, "I don't know enough about the topic to have an opinion"?
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Gimme a good biography to read. I like reading about real people who live interesting lives! Recent favourites include: ‘Me’ by Elton John (and Alexis Petridis) & ‘An Unsung Hero - Tom Crean, Antarctic Survivor’ by Michael Smith.
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John Kennedy retweeted
Made me think perhaps acupressure is an area that should be looked at more with regards to histamine intolerance and #LongCovid anyone know of any recent research or findings specifically relating to histamine issues?
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John Kennedy retweeted
Irish health executive continues to defend their plans to hire pulmonologist/dieticians to manage LCt and ignore the need for neuro rehab which is not resourced. They comment their interim plan: they are adaptable to new science. Brain damage with LCidentified 18 mo ago. Too late
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When doctors say, "Be patient, #LongCovid is new," what they mean is, "It's new to us because we've been able to ignore infection-triggered chronic illness until now." #MECFS #chronicillness #LymeDisease #Fibromyalgia
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John Kennedy retweeted
It's #SevereMEDay Very severe ME Day 1,535 for me. Bedridden 4 yrs unable to bear weight, feed myself, brush teeth etc. Require 24/7 care from unpaid carer husband who is also trying to do ft job wfh. #MyalgicEncephalomyelitis #MECFS #SevereME #ME #MEKills #SevereMEweek
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Know what make a neurologist nervous?..findings like these.
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Now girls, form an orderly queue please 😂😂😂
Single and looking for someone - what would be your dating advise to him? 🤔
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A thread on my experience with @Vedicinals_9 for my #LongCovid. Please note that this is information & not advice. Also, I have paid for @Vedicinals_9 & have not been asked to promote the product by the vendor #LongCovid #MECFS #PoTS #MCAS 1/n
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Selling homing pigeons is a great way to make money. I’ve sold the same one 46 times now.
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John Kennedy retweeted
“That is why the coronaviruses are so successful and are able to give rise to the pandemics. They are able to use the apoptosis pathway to combat the interferon pathway.” Yuen said the findings were “a huge conceptual change” in virology and “unexpected”. scmp.com/news/hong-kong/heal…
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Who’s the most famous person you’ve ever interacted with on Twitter (a like, a comment or a retweet)? … I haven’t had any interaction with anyone in ‘celebrity’ circles.
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John Kennedy retweeted
Do we need another 30 or 40 research papers showing there is an autoimmune component to #LongCovid? Why can’t we get access to testing?
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