I remember watching a cooking show in which a US contestant kept arguing with Nigella Lawson's instructions on making fish and chips. Prescribing graded exercise for #MEcfs & #LongCovid while ignoring the experts at @4Workwell & @PhysiosForME is a similar error. #MEAwarenessHour
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I don't think that happens in US anymore.. it does happen in UK
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My #LongCovid support group leader, who is an MD, gave us guidance on pacing in session yesterday. Presented the "rule of tens". I'm brand new & hate being the loudmouth neurodivergent dissenter w/ the doctorate. Not ready to say "you're wrong."
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Ugh! It is so important for the subset of #LongCovid patients who meet #MEcfs criteria to be diagnosed so they can be protected from this harmful advice. This letter from @4Workwell is helpful to give to uninformed healthcare providers: workwellfoundation.org/wp-co…

Sep 29, 2022 · 2:09 AM UTC · Twitter Web App

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This @CDCgov fact sheet for healthcare providers on managing post-exertional malaise is also helpful. cdc.gov/me-cfs/pdfs/interage…
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What are your thoughts on this Dr. Davenport @sunsopeningband ? And the overall thread?🙏
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Thank you for these, Rachel. I'm planning to send some resources and a few words in email, just trying to decide how to frame. What's really sad and alarming is I introduces PEM as a concept to the group in response to hearing others' check-ins, describing ...
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... what were clearly worsened symptoms after overexertion -- classic PEM ("I'm really exhausted if I work more than usual", "I feel my body pulsating sometimes," etc). So I explained it, and MD used to segue into pacing advice, some of which was fine ...
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