UK based Campaign for recognition of the debilitating effects of long term Covid 19 #LongCovid. Recognition - Research - Rehab Email us at info@longcovidsos.org

Joined July 2020
Today #LongCovid sufferers are sending a #messageinabottle to Government. Watch it here: redirect.invidious.io/IIeOoS_A4c8
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Definitive proof that viral reservoirs contribute to #LongCovid is still lacking but preliminary research has recovered virus from anatomical sites including the eyes, brain and heart many months after people became infected theguardian.com/society/2022…
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LongCovidSOS retweeted
“Covid is far from solved..” Thank you @edyong209 for your diligence
🚨I wrote about what the US can do to fight the ongoing pandemic, which its leaders have decided to sleepwalk through. When political will evaporates, what rises in its place? This piece is an attempt to resist fatalism, and find hope amid inaction. 1/ theatlantic.com/health/archi…
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"We should know what's going on in our country" - no free testing means we are not collecting #COVID data (other than excellent work by @ONS) - and the press isn't reporting on the rise in cases. The public need to be able to make informed judgements on their risk #LongCovid
Are we entering the fifth wave of Covid? Both @theJeremyVine and @StormHuntley have Covid - along with several members of the @JeremyVineOn5 team. As many as 1.7m people in the UK have had it in the last week - so shouldn't the government be doing more to stop it? #JeremyVine
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Some people develop #LongCovid after an asymptomatic initial infection. Many more don't realise that the ill-health they are suffering is related to a #COVID infection and others are wrongly diagnosed Lack of public messaging doesn't help either time.com/6191655/long-covid-…
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LongCovidSOS retweeted
As a team member of @LongCovidSOS I am incredibly proud to support & have signed this letter. The emotional strength & physical toll it took the fantastic kids give the @LongCovidKids Support pack to @10DowningStreet was inspiring. Thank you to everyone #LongCovidKids 🌈
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The UK Covid-19 Inquiry has been formally established and can officially start work. The Terms of Reference submitted to @BorisJohnson by Baroness Hallett have been accepted @LongCovidSOS along with other #LongCovid groups hope to be active participants covid19.public-inquiry.uk/20…
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Researchers claim #LongCovid breathlessness is caused by an abnormality in the transfer of oxygen from the lungs to blood vessels “It’s very exciting for us to actually find something that’s wrong - that it’s in the patient’s lungs and not in their head” globalnews.ca/news/8950820/l…
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Whether this is caused by problems with capillaries being blocked or some other mechanism remains to be defined
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Not mentioned in the article, this research was carried out using Xenon gas MRI Persistent 129Xe MRI Pulmonary and CT Vascular Abnormalities in Symptomatic Individuals with Post-Acute COVID-19 Syndrome #LongCovid pubs.rsna.org/doi/10.1148/ra…
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We are proud to support @LongCovidKids in this letter to @BorisJohnson in response to the inappropriate reply they received after their visit in person to @10DowningStreet along with 12 children with #LongCovidKids
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If you are outraged that NHS staff with #longcovid all over the U.K. have lost or are about to lose their Covid special pay, please support the work of @LCNMUK @LongCovidScot @LongCovidSOS @LongCOVIDPhysio @long_covid @LongCovidAdvoc @LC_UK_Action @longcovidwork and others
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Beautiful sunset in Edinburgh on the evening before we take @LongCovidKids to the heart of the Scottish Government. Tomorrow, families from our Scottish support services will meet @HumzaYousaf to share their experiences & explain how they feel living w/#LongCovid #LongCovidKids
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“In addition, Banerjee said research from scientists in South Africa had suggested that people with long Covid have microclots in their blood, while studies in the UK suggested almost a third of long Covid patients have clotting abnormalities.”
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“One day kids are okay and the next - post COVID they’re struggling with day to day activities & some in wheelchairs from fatigue and the disabling symptoms of #LongCovid” A short film by Jake Age 11 @VictoriaParish2 #LongCovidKids @10DowningStreet @sajidjavid @LongCovidSOS
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LongCovidSOS retweeted
"Exercise is the only thing that will make you better....." said the Lung Consultant who specialises in Covid and Long Covid.....@LongCovidSOS @LC_UK_Action @long_covid @OT_Skiff @OTforLC
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Predicted+warned about... Not rocket science.. The only cure for Covid is prevention of transmission. Don't get infected. If you do once, try not to get reinfected. For that we need prevention of transmission in all workplaces + public spaces. Ventilate filter, mask up
Is #LongCovid to blame for our army of absent workers? Baffled economists fear a legacy of the virus is behind the sharp fall in available staff thetimes.co.uk/article/is-lo…
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Finding more immediate ways of improving mitochondrial health could help the millions of people with #LongCovid and #MECFS PEM is also experienced by people with mitochondrial disease and dysautonomia has been associated with mitochondrial dysfunction theguardian.com/science/2022…
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