UK-based, international charity for families & children living with #LongCovid #PIMS Patron: Michael Rosen linktr.ee/LongCovidKids

UK
Joined September 2020
🧵 Our guidebook provides information, support and signposting. 📕 Chapters for young people, parents & caregivers & schools. 🔬Evidence based information & case studies 🤗 Nobody has to feel alone. To learn more ⬇️ longcovidkids.org/support-gu… #LongCovid #LongCovidKids
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We welcome global recognition of #LongCovid in children and young people in the @WHO webinar today. Hopefully we’ll start seeing the publication of biomedical research & therapeutic trials at future events. We #support families from around the 🌎 🤗 longcovidkids.org/support-se…
Reflections, a huge thanks to @WHO & the teams all over the world working on definitions, consensus & epidemiological research, you are offering hope. BUT we are still badly failing on biomedical research & treatment, which is urgent and pressing for families. #longcovidkids
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Long Covid Kids HQ #LongCovidKids #ProtectAllKids retweeted
agree, this @WHO was mostly directed to those still not trusting kids and families reporting long term symptoms after covid, since simply allowed doc globally to say “we see LC”. for those of us doing it since 2yr, there was nothing new. but still much appreciated effort
Reflections, a huge thanks to @WHO & the teams all over the world working on definitions, consensus & epidemiological research, you are offering hope. BUT we are still badly failing on biomedical research & treatment, which is urgent and pressing for families. #longcovidkids
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Dr Wilson Were , Medical Officer, Maternal, Newborn, Child and Adolescent Health of the WHO, Switzerland is now presenting and making some closing remarks #LongCovidKids #LongCovid
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THIS! International Collaboration for international solutions 💕 #LongCovidKids @DrMunblit
Delphi process and a plea from Daniel Munblit to get involved and make this as international as possible. Brilliant work to all involved! #longcovidkids
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Long Covid Kids HQ #LongCovidKids #ProtectAllKids retweeted
Baltimore - models of care. I fundamentally disagree that the biopsychosocial model is what is needed for #longcovidkids. This is why services need to be co-created with families, children and those who understand the pathophysiology of the disease.
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Long Covid Kids HQ #LongCovidKids #ProtectAllKids retweeted
Now another talk about biopsychosocial model of care and rehabilitation. A focus on physical activity and psychology. Seriously? I am disappointed that @WHO as part of what has been a fantastic webinar have dedicated a section to outdated and harmful practices. #longcovidkids
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Referral process at Kennedy Krieger Institute, children do not require a previous positive #COVID19 test result to avail of their clinic. #LongCovid #LongCovidKids
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Dr Isabelle Dewandel of Desmond TuTu TB Centre, Dept of Paediatrics and Child Health, of Stellenbosch University , Cape Town is now presenting #LongCovid #LongCovidKids
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Dr Selina Kikkenborg Berg, Department of Cardiology , Copenhagen University is presenting now regarding large scale study carried out investigating #LongCovid symptoms in children , carried out via survey. #LongCovidKids
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Daniel Munblit Professor of Paediatrics of Sechenov University Moscow, is now presenting, and is discussing core outcome set development for post Covid condition in children and young people #LongCovid #LongCovidKids
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'Post Covid syndrome is an extreme multi-dimensional problem in children' Dr Munblit #LongCovidKids
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Dr Laura Malone Assistant Prof of Neurology and Physical Medicine and Rehabilitation John Hopkins University, is now presenting, discussing models of care for #LongCovid in children and young people #LongCovidKids
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Dr Stephen Freedman Prof of Paediatrics and Emergency Medicine , Alberta Children's Hospital Research Institute , Canada, is now presenting #LongCovid #LongCovidKids #COVID19
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Dr Nina Putri Dep. of Paediatrics of Jakarta Indonesia is now presenting on the impact of Covid19 in #children and young people in #Indonesia. Starting by discussing SARS1 & MERS outbreaks and how those outbreaks compare in terms of impact to #COVID19 #LongCovid #LongCovidKids
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